Every year, I cringe when the packet comes with my plan’s changes for the upcoming year. Late yesterday afternoon, I went over for my mail and my insurance stuff was there. It was not good. After first looking at the part that had all the $$$ increases that I can’t afford, I pulled out the formulary booklet to look at that. I was only on the very first drug when everything came to a screeching halt. Apidra will not be covered in 2012. Only a little over a week after finding out there will be an Apidra SoloSTAR shortage and worrying about how I will survive a couple months without it, I am now being told I can’t have it period.
I would like to say that I felt like someone put a gun to my head, but putting a gun to my head would be too easy. I have neuropathy, both peripheral and autonomic. I have gastroparesis. Apidra is out of my system in 2 ½ hours. It is the best insulin that I have used. I can take a shot of Apidra every hour to keep my blood sugar stable after eating. I can’t do that with Novolog or Humalog. In the almost 3 ½ years that I have been using Apidra, I have managed to keep my A1cs in the 5s other than one 6.1 and the 6.1 was because of all the pump problems I had. I was never able to do that with the other insulins. I have fought so hard to keep my blood sugar under control and try to keep the complications I have at bay. Now I am basically being told you get to die but you have to die a very slow painful death from neuropathy.
Needless to say, I have been doing a lot of crying and praying since yesterday. If I want to continue to use Apidra, it will cost me $90 a month. I don’t have $90 to spend on insulin along with the all the other co-pays for drugs, test strips, doctors, lab fees and everything I need just to stay alive. I am already on a bare bones budget. I am on disability so it isn’t like I can go out and get a part-time job to help tide me over.
My plan is a Medicare Advantage plan. I went to the Medicare.gov website to see what else is available in my area and my choices are pretty limited. You can put in your drug list and that narrows down the choices even further. Most of the doctors I use, I could care less about but I do have two that I would like to keep. Of course, one of the plans that did have Apidra doesn’t have the doctor I use for my foot – he is the best doctor that I have ever had and considering all the other idiots I have seen, I don’t want to give up a doctor that I actually trust. I am basically screwed no matter which way I look at it.
This morning I called my plan’s customer service to find out how I can file an exception to try and get Apidra. His first response was that my doctor has to do it but their website said that I could also do myself. If my doctor would do it, I would have a snowball’s chance in h**l in having that go thru. Now I have to wait for the pharmacy department to call me back. I will start working on writing up why I need Apidra as opposed to the insulin they will actually pay for. I will continue to pray that I am able to continue to get it – it is literally a death sentence for me if I don’t.